University Health Network<\/a> (UHN) for an in-person consultation in Toronto. They should be contacting me in the next 2-3 days to set up the appointments.<\/p>\n\n\n\nFrom what we know today the schedule is likely to be as follows: <\/p>\n\n\n\n
The initial trip to UNH for the consult over 4-5 days. This is a final confirmation that I’m a good candidate for the CAR-T therapy. If the consult is positive, my T-cells will be collected for processing by the lab at that time.<\/p>\n\n\n\n
Lab processing is estimated to take 3-4 weeks. During this time we will return home and yes we’ll need to do the 14 day quarantine thing. \ud83d\ude41<\/p>\n\n\n\n
Once the cells have been processed we will travel back to Toronto for 4-5 weeks where I’ll be admitted for the therapy (5-6 days) and then monitored for recovery (the rest of the time). <\/p>\n\n\n\n
So, all up it’s looking like 10 weeks. I should be good to go for lake season.<\/p>\n\n\n\n
Of course there are some COVID considerations to deal with regarding all the inter-provincial travel and we will have a Manitoba Patient Representative that will be working with us to sort through all the details.<\/p>\n\n\n\n
Thanks for all the love, support, encouragement, and prayers for the both of us in this new part of the journey.<\/p>\n","protected":false},"excerpt":{"rendered":"
Well, things are moving right along and I’m definitely getting the feeling that this is really happening. Last Friday we received a letter from the Manitoba Government indicating they would fund the CAR-T therapy in Ontario as the three Manitoba based approvals had been confirmed. Today we received notification that I’ve been approved by the … <\/p>\n
Continue reading “Getting Real”<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"nf_dc_page":"","jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[3],"tags":[35,38,40],"class_list":["post-890","post","type-post","status-publish","format-standard","hentry","category-health","tag-car-t","tag-toronto","tag-uhn"],"jetpack_featured_media_url":"","jetpack-related-posts":[],"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/bigdadoo.com\/journey\/wp-json\/wp\/v2\/posts\/890","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/bigdadoo.com\/journey\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/bigdadoo.com\/journey\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/bigdadoo.com\/journey\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/bigdadoo.com\/journey\/wp-json\/wp\/v2\/comments?post=890"}],"version-history":[{"count":4,"href":"https:\/\/bigdadoo.com\/journey\/wp-json\/wp\/v2\/posts\/890\/revisions"}],"predecessor-version":[{"id":896,"href":"https:\/\/bigdadoo.com\/journey\/wp-json\/wp\/v2\/posts\/890\/revisions\/896"}],"wp:attachment":[{"href":"https:\/\/bigdadoo.com\/journey\/wp-json\/wp\/v2\/media?parent=890"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/bigdadoo.com\/journey\/wp-json\/wp\/v2\/categories?post=890"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/bigdadoo.com\/journey\/wp-json\/wp\/v2\/tags?post=890"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}
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