{"id":1221,"date":"2021-04-16T08:55:34","date_gmt":"2021-04-16T13:55:34","guid":{"rendered":"http:\/\/bigdadoo.com\/journey\/?p=1221"},"modified":"2021-04-16T10:07:47","modified_gmt":"2021-04-16T15:07:47","slug":"day-30-ok-really-the-last-day","status":"publish","type":"post","link":"https:\/\/bigdadoo.com\/journey\/2021\/04\/16\/day-30-ok-really-the-last-day\/","title":{"rendered":"Day +30: OK, really the last visit"},"content":{"rendered":"\n<p>Friday morning, 8 a.m., we\u2019re back down at PMH for one more thing. And of course there is an interesting back story to today\u2019s visit.<\/p>\n\n\n\n<figure class=\"wp-block-image size-large\"><img data-recalc-dims=\"1\" decoding=\"async\" width=\"525\" height=\"494\" data-attachment-id=\"1223\" data-permalink=\"https:\/\/bigdadoo.com\/journey\/2021\/04\/16\/day-30-ok-really-the-last-day\/img_0598\/\" data-orig-file=\"https:\/\/i0.wp.com\/bigdadoo.com\/journey\/wp-content\/uploads\/2021\/04\/img_0598.jpg?fit=2320%2C2183&amp;ssl=1\" data-orig-size=\"2320,2183\" data-comments-opened=\"1\" data-image-meta=\"{&quot;aperture&quot;:&quot;2.2&quot;,&quot;credit&quot;:&quot;&quot;,&quot;camera&quot;:&quot;iPhone X&quot;,&quot;caption&quot;:&quot;&quot;,&quot;created_timestamp&quot;:&quot;1618560846&quot;,&quot;copyright&quot;:&quot;&quot;,&quot;focal_length&quot;:&quot;2.87&quot;,&quot;iso&quot;:&quot;200&quot;,&quot;shutter_speed&quot;:&quot;0.016666666666667&quot;,&quot;title&quot;:&quot;&quot;,&quot;orientation&quot;:&quot;1&quot;}\" data-image-title=\"img_0598\" data-image-description=\"\" data-image-caption=\"\" data-large-file=\"https:\/\/i0.wp.com\/bigdadoo.com\/journey\/wp-content\/uploads\/2021\/04\/img_0598.jpg?fit=525%2C494&amp;ssl=1\" loading=\"lazy\" src=\"https:\/\/i0.wp.com\/bigdadoo.com\/journey\/wp-content\/uploads\/2021\/04\/img_0598-1024x964.jpg?resize=525%2C494\" alt=\"\" class=\"wp-image-1223\" srcset=\"https:\/\/i0.wp.com\/bigdadoo.com\/journey\/wp-content\/uploads\/2021\/04\/img_0598.jpg?resize=1024%2C964&amp;ssl=1 1024w, https:\/\/i0.wp.com\/bigdadoo.com\/journey\/wp-content\/uploads\/2021\/04\/img_0598.jpg?resize=300%2C282&amp;ssl=1 300w, https:\/\/i0.wp.com\/bigdadoo.com\/journey\/wp-content\/uploads\/2021\/04\/img_0598.jpg?resize=768%2C723&amp;ssl=1 768w, https:\/\/i0.wp.com\/bigdadoo.com\/journey\/wp-content\/uploads\/2021\/04\/img_0598.jpg?resize=1536%2C1445&amp;ssl=1 1536w, https:\/\/i0.wp.com\/bigdadoo.com\/journey\/wp-content\/uploads\/2021\/04\/img_0598.jpg?resize=2048%2C1927&amp;ssl=1 2048w\" sizes=\"auto, (max-width: 767px) 89vw, (max-width: 1000px) 54vw, (max-width: 1071px) 543px, 580px\" \/><figcaption>My latest medical experience. \ud83d\ude0a<\/figcaption><\/figure>\n\n\n\n<p>Yesterday, during my in hospital clinic visit the CAR-T nurse practitioner says that they want to put me on a new medication and there are two options.<\/p>\n\n\n\n<ul class=\"wp-block-list\"><li>A liquid that you take once a day.<\/li><li>Another product that you go to the hospital and they administer with an inhalation process and each treatment lasts for 1 month.<\/li><\/ul>\n\n\n\n<p>At the time it seemed like less trips to the hospital would be a good idea so I opted for the liquid. All good, they send the order down to the pharmacy and I can pick it up on the way out.<\/p>\n\n\n\n<p>At the pharmacy I get the product, the explanation on how to use it, side effects etc.   I\u2019m about to pay and it\u2019s $700! This is a small bottle with 21 10ml doses. I have a discussion with the pharmacist who is extremely helpful. She tells me the other product is much less expensive and offers to contact the doctors and talk to them about changing the prescription etc. and will call me back because my ride home is now waiting outside. I\u2019m thinking I can wait until I\u2019m home to start the inhalation product.<\/p>\n\n\n\n<p>We\u2019re about 4 blocks away from the hospital when the pharmacist calls back. They have changed the medication to the inhalation product and booked an appointment for 8am Friday to have it administered and the prescription will be ready at 3:30pm. They <strong><em>really<\/em><\/strong> want to have me on this medication before we travel.<\/p>\n\n\n\n<p>So we need to kill about an hour in a city that is locked down and nothing is open. We park the car and walk around for a while until it\u2019s time to get the new medication. When I pick it up it\u2019s $167 but the hospital has covered the cost so it\u2019s $0 to me! \ud83d\ude0a<\/p>\n\n\n\n<p>So, what is this magic stuff? It\u2019s Pentamide and it\u2019s for the prevention of the lung infection Pneumocystis jirovecii pneumonia when Septra, a tablet that is dirt cheap, can\u2019t be used because of low blood counts, which is me right now.<\/p>\n\n\n\n<p>It\u2019s a powder that they mix with water and the gadget you see in the picture above aerosolizes the mixture and I\u2019m sucking it into my lungs. The whole process takes about 10 minutes, no side effects and I\u2019m on my way.<\/p>\n","protected":false},"excerpt":{"rendered":"<p>Friday morning, 8 a.m., we\u2019re back down at PMH for one more thing. And of course there is an interesting back story to today\u2019s visit. Yesterday, during my in hospital clinic visit the CAR-T nurse practitioner says that they want to put me on a new medication and there are two options. A liquid that &hellip; <\/p>\n<p class=\"link-more\"><a href=\"https:\/\/bigdadoo.com\/journey\/2021\/04\/16\/day-30-ok-really-the-last-day\/\" class=\"more-link\">Continue reading<span class=\"screen-reader-text\"> &#8220;Day +30: OK, really the last visit&#8221;<\/span><\/a><\/p>\n","protected":false},"author":2,"featured_media":0,"comment_status":"open","ping_status":"open","sticky":false,"template":"","format":"standard","meta":{"nf_dc_page":"","jetpack_post_was_ever_published":false,"_jetpack_newsletter_access":"","_jetpack_dont_email_post_to_subs":false,"_jetpack_newsletter_tier_id":0,"_jetpack_memberships_contains_paywalled_content":false,"_jetpack_memberships_contains_paid_content":false,"footnotes":""},"categories":[3],"tags":[],"class_list":["post-1221","post","type-post","status-publish","format-standard","hentry","category-health"],"jetpack_featured_media_url":"","jetpack-related-posts":[],"jetpack_sharing_enabled":true,"_links":{"self":[{"href":"https:\/\/bigdadoo.com\/journey\/wp-json\/wp\/v2\/posts\/1221","targetHints":{"allow":["GET"]}}],"collection":[{"href":"https:\/\/bigdadoo.com\/journey\/wp-json\/wp\/v2\/posts"}],"about":[{"href":"https:\/\/bigdadoo.com\/journey\/wp-json\/wp\/v2\/types\/post"}],"author":[{"embeddable":true,"href":"https:\/\/bigdadoo.com\/journey\/wp-json\/wp\/v2\/users\/2"}],"replies":[{"embeddable":true,"href":"https:\/\/bigdadoo.com\/journey\/wp-json\/wp\/v2\/comments?post=1221"}],"version-history":[{"count":3,"href":"https:\/\/bigdadoo.com\/journey\/wp-json\/wp\/v2\/posts\/1221\/revisions"}],"predecessor-version":[{"id":1226,"href":"https:\/\/bigdadoo.com\/journey\/wp-json\/wp\/v2\/posts\/1221\/revisions\/1226"}],"wp:attachment":[{"href":"https:\/\/bigdadoo.com\/journey\/wp-json\/wp\/v2\/media?parent=1221"}],"wp:term":[{"taxonomy":"category","embeddable":true,"href":"https:\/\/bigdadoo.com\/journey\/wp-json\/wp\/v2\/categories?post=1221"},{"taxonomy":"post_tag","embeddable":true,"href":"https:\/\/bigdadoo.com\/journey\/wp-json\/wp\/v2\/tags?post=1221"}],"curies":[{"name":"wp","href":"https:\/\/api.w.org\/{rel}","templated":true}]}}