We had a phone consultation with Dr. Seth Shaffer, the Crohn”s GI specialist this past Friday.
The phone call lasted about 45 minutes and started with me giving a detailed history from my perspective of everything that has lead up to this point. He indicated that he’s had several discussions with Dr Hyun the Colo-rectal surgeon and has reviewed all the scans and biopsy results.
After all the review,, he is still not sure why this is happening or exactly what “it” is. The consensus is that it is Crohn’s, mainly because perianal abscesses and fistulas are associated with Crohn’s but it’s unusual to not to have bowel issues as well. Apparently only 5% of people have Crohn’s without any bowel issues.
Again, all the biopsies are reviewed and don’t show cancer, a good thing, just “non-specific inflammation”
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